Monday, January 27, 2014

It's late & I'm heading into bed soon. I'm up, though, cause I have an appointment with my oncologist, Dr. Nakajima. I have to have a real talk with him - and I haven't told you about it because I don't want you to worry that you may experience the same thing. I'm pretty sure I'm in the minority.

Anyways, I've been experiencing shooting pains from my elbows to my hands. When it reaches my hands, they tingle, itch and/or feel like they're being poked with a hundred needles. Needless to say, it isn't pleasant. Couple that with my joint pain, the pain that radiates from my back to my front legs all the way to the soles of my feet, & I'm hurting a lot more than I thought I would at this time.

Let me be REALLY CLEAR, though! I contracted MRSA during the mastectomy & spent months trying to knock it out. I had 3 additional surgeries & an extended hospital stay so they could administer IV antibiotics. They also left the wound open, packed it, & cleaned it. It wasn't pleasant. Then I had the max amount of chemo they could give you followed by 6 weeks of radiation - a lot of people don't have to go thru that many. What I'm experiencing is unusual. Please don't think that because I'm sharing this with you that it's in any way normal. If you have any questions, or want to pick my brain, please leave a message either at the bottom of this blog or directly to me at Please put "cancer" or something like that in the memo line, though, so I know it's okay to open the email.

Anyways, I've been having pain & Dr. Nakajima gave me pain meds a few months ago. I don't want to have to continue to take them, which is evidenced by the fact that I don't get in touch with Dr. Nakajima before any appointment to ask for more. I take them sparingly, but the fact of the matter is that I need to ask him for more.

The weird thing is that I'm nervous about doing that! Matt keeps telling me that I just went thru Hell, & am dealing with painful side effects & that's his job to help me. Still, I don't want him to think I'm trolling for drugs. Matt made me promise I'd ask though.

I'll let you know this week what happened. Also, if you have ANY suggestions about dealing with this neuropathy & the tingling/numbing/needles sticking in my hands, I'd sure appreciate your input.

K, gotta get to bed. It's after 2:00 am! Thank you so much for your continued prayers.

My guestbook