Tuesday, October 15, 2013

PINKTOBER (or, shoot me now)

During Pinktober, I and my fellow cancer bloggers, rail about the world turning pink and all the money to be made by slapping a pink ribbon on just about everything. However, for the record, I want to thank everyone who purchased the products, signed up for the walks, and wore (or wear) pink ribbons. I know that you wanted to help, and thought you were doing so. I can’t tell you how deeply I appreciate what you’ve done. BBC (before breast cancer), I did the same thing because, like you, I never knew the truth. Still, if you want to wear the pink ribbon – you go right on ahead! I’m not offended! I think you’re awesome; I just want us all to take the next step & demand honesty from those that claim to be helping us find “the cure”. Again, thank you for wanting to help the cause and women like me. God Bless You.

I can’t help it, but every time Pinktober rolls around, I think about Ralphie in the movie, “Christmas Story”. Aunt Clara made a big pink bunny suit for him, which his mother forced him to try on. As he comes down the steps, his mother thinks that it’s adorable while his father shares in his son’s horror. He says that Ralphie looks like a big pink nightmare. All I can think about is the other months, staring as October is forced to wear pink; you just know they’re all laughing and pointing. Which is sad, because October should be equated with falling leaves, apple cider, pumpkins, and Halloween. 

Sadly, like Ralphie, it’s now just a big pink nightmare.

I have my own rants coming your way about this time of the year when all the world turns pink and companies slap a pink ribbon on just about everything. Hey, there’s money to be made! But before I rail, I want to share a post from my blogging sister, Ann Silberman. Ann is a metastatic cancer patient, and is fighting each and every day. The way I see it, if anyone can beat Stage 4, it’s Ann (and my friend, Stacy).

You can keep up with Ann on her blog, “Breast Cancer? But Doctor – I hate Pink”. Here’s her story about being contacted to help a guy “save man’s real best friend – boobs”. Ugh. Wouldn’t it be nice if the emphasis was on saving the woman, not the boobs? Anyways, here’s what Ann had to say to the idiot:

Look at this jerk. He actually wrote me a private message and asked me to support him in his effort to save "man's real best friend...boobs." and asked me if I wanted to "rock a tee shirt" like a dying woman has the energy to "rock" anything, and support Komen and some damn race. He didn't bother to call me by name, (more evidence that those of us with mets are not people) he didn't learn my stance on Komen, didn't even gather a little clue by the name "I hate pink." He just blithely asks me to help him get MONEY so he can enjoy himself. He's spamming me, obviously, but hey, it's for the "cause" How could I possibly object?

My response? In part: "I, along with many metastatic women, do not support Komen and won't have anything to do with them. Komen does not help the ONLY women who will die of breast cancer - those of us with metastatic disease. Out of hundreds of millions of dollars raised, Komen donates only 17% towards research that could possibly result in a cure. The rest of their money goes to throw parties and races for the "Survivors" which also include women who never had cancer. Their profound focus on early detection has caused tens of thousands of women to lose their breasts over a disease that is called DCIS which could never, ever have killed them. Research would help them too.

I am dying of cancer. It is not cute, it is not pink. It is not about bras, and it's not about "rocking" anything.

You want to show support for women with cancer? Than learn something, don't just do something you enjoy already (exercise) and pretend you are helping. Read my blog. Read sites like "Think Before You Pink." Watch the movie Pink Ribbons, Incorporated. Read the New York Times article (where I am quoted) here:


Ugh, I hate this month, where every idiot in the world wants to make a buck off the suffering of the 40k women who will die this year of breast cancer and everybody thinks because I have written about my terminal disease of breast cancer I MUST support Komen. That is how brainwashed they have people.

Do not help this guy and in fact, let's get the word out that if he wants to run in a damn race then he should effing pay for it himself. His prizes for donations include such sensitive and charming items as "sweater puppy solo cups"


I suggest you ask any other metastatic women to support you as you will likely get a very similar response.

Thanks, Ann, for always telling it like it is. If you’d like a REAL eye opener at how low Komen will go to get money for feel good walks & parties, check out Ann’s latest post on her Facebook page. You can read it here.

Un freaking believable.

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